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The majority of autistic adults aged 40 and above in the UK remain undiagnosed, according to recent research findings.

Group Faces Enhanced Risk of Poorer Health, Social Loneliness, Suicidal Thoughts, and Shorter Lifespan; Call for Immediate Funding in Awareness and Support Programs Elevated

Undiagnosed autism cases among adults over 40 make up approximately 90% in the United Kingdom, as...
Undiagnosed autism cases among adults over 40 make up approximately 90% in the United Kingdom, as reported by researchers.

The majority of autistic adults aged 40 and above in the UK remain undiagnosed, according to recent research findings.

In the realm of health and developmental psychology, a significant focus has been on the well-being of older autistic adults. A review published in the Annual Review of Developmental Psychology has shed light on this often overlooked group, revealing that they consistently face higher rates of physical and mental health conditions.

The review, led by psychologist Dr. Stewart, found that older autistic adults are more likely to develop conditions typically associated with aging, such as Parkinson's disease, osteoporosis, and arthritis. Moreover, they are at higher risk of immune diseases, cardiovascular disease, neurological disorders, gastrointestinal disorders, anxiety, and depression.

A concerning factor is that the life expectancy for autistic individuals in the UK is lower compared to non-autistic individuals, with an average age of 75 as opposed to 81. Part of this discrepancy may be genetic, but a large part comes from external challenges such as stigma, barriers to education and employment, social isolation, and difficulties accessing physical exercise.

These external challenges create a knock-on effect that worsens both mental and physical health. For instance, research indicates that older adults with high autistic traits are six times more likely to experience suicidal thoughts or self-harm, and four times more likely to be diagnosed with early-onset dementia.

The 2021 study in the United Kingdom found a staggering 787% increase in autism diagnoses between 1998 and 2018. However, it's important to note that this rise is largely due to better awareness and wider diagnostic criteria rather than a genuine increase. Autism, first clinically described in the 1920s and 1940s, was not formally included in diagnostic manuals until the 1960s.

Despite the growing attention, research into aging in autistic populations has been relatively scarce. In fact, only 0.4% of all autism research since 1980 has focused on people in midlife or older age. This is alarming, given that in the UK, 89 to 97% of autistic adults aged over 40 are undiagnosed.

Dr. Stewart emphasized the need for increased awareness and identifying undiagnosed autistic people, particularly among older adults. He also highlighted the importance of researching the kind of support people want, how best to implement it, and ensuring that people aren't falling through the cracks in healthcare access or social isolation.

In conclusion, the health and well-being of older autistic adults is a critical issue that requires urgent attention. More investment is needed in support and services for this often overlooked group, with a focus on understanding their unique needs and providing tailored solutions.

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