Negative anticipation isn't conducive to living with Angelman syndrome

In a world where life with Angelman Syndrome (AS) can sometimes feel unpredictable and challenging, one parent is sharing their experiences to help others and maintain a positive outlook. The author, a proud parent to a 13-year-old daughter named Juliana, pens this column to offer support and encouragement to parents navigating similar journeys.

Juliana, like many children with AS, has experienced moments of challenging behaviour and meltdowns. However, she has also shown remarkable resilience, recovering from difficult situations with determination. The author makes it a point to acknowledge and praise Juliana's positive experiences, as a part of their mindfulness practice.

The author's column is not a platform for personal opinions, but a space for sharing information and insights related to AS. As a strictly news and information website, it does not provide medical advice, diagnosis, or treatment. The author seeks out information that can help improve their quality of life and that of their family.

One such piece of wisdom came from Brené Brown, a professor, author, and researcher known for her work on courage and bravery. In her Netflix special, "Brené Brown: The Call to Courage," Brown reminded the author to relax more when things are going well, encouraging them to focus on the good instead of potential doom.

The author practices a mindfulness exercise called shoshin to push foreboding joy out of their mind. Gratefully naming what is going well in the day is a part of this practice. This helps the author to focus on the positive attributes of their daughter and their life, rather than dwelling on the challenges.

The author's recent column, discussing the theme of "preparatory anxiety toward the good," was penned by Eva Illouz. The author faces challenges, but finds solace in the wisdom of others and the strength of their daughter. Last Easter, for instance, presented some difficulties, but this year, the transition to a seat was the only hiccup.

The author's journey is one of resilience, positivity, and determination. By sharing their experiences, they hope to offer hope and encouragement to other parents facing similar challenges. After all, focusing on the good and taking life one day at a time is the key to navigating the unpredictable journey of life with a child who has AS.