Collaboration of ASF and CASS Expands Influence Amongst Angelman Syndrome Circles

In a significant move to bolster their offerings within the Angelman community, the U.S.-based Angelman Syndrome Foundation (ASF) and the Canadian Angelman Syndrome Society (CASS) have joined forces. This partnership, aimed at serving the Angelman community more effectively, will see CASS rebrand as Angelman Syndrome Foundation Canada (ASF Canada).

Dr. Jessica Duis has been appointed the new director of ASF Canada, a role that comes as a result of the collaboration with the U.S.-based ASF. Both organizations will continue to work towards supporting families from diagnosis to therapeutic treatments.

Over the past 30-plus years, ASF has contributed more than $15 million towards research for Angelman syndrome. ASF Canada, formerly CASS, anticipates expanding its clinic network through its partnership with ASF. The U.S.-based foundation, headquartered in Chicago, currently operates a network of 25 clinics around the world, providing tailored medical care for people with Angelman syndrome. This year, ASF plans to add four more clinics to its network.

Kyle Rooney, president of ASF's board of directors, stated that the partnership will enhance family services, research, and clinical trial readiness. Kelly Meissner, executive director of ASF Canada, expressed her commitment to improving care and treatment options for individuals with Angelman syndrome.

Amanda Moore, CEO of ASF, reaffirmed the shared philosophy and programming between ASF and ASF Canada, with a focus on assisting and strengthening families affected by Angelman syndrome. Both organizations will continue to work hard daily to support families in their journey with Angelman syndrome.

Angelman syndrome is a genetic disease that can cause developmental delays, problems with speech and balance, and seizures. Living with Angelman syndrome can be challenging, as people with the disease may have difficulty sleeping and need help with activities of daily living. While there's no cure for Angelman syndrome, treatments can help manage some of the disease's symptoms.

The collaboration between ASF and ASF Canada aims to use their networks and resources to help more people with Angelman syndrome. The mission of ASF Canada includes advancing better care and treatment options for individuals living with Angelman syndrome, and building a strong, empowered community.

This strategic partnership between ASF and ASF Canada is expected to strengthen both organizations and provide a brighter future for those affected by Angelman syndrome.