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Caregiver's Struggle: Birgit's Story Highlights Dementia Support Entitlements in Germany

Birgit's story shows the need for better awareness of dementia care entitlements. Documenting care needs and appealing assessments can help caregivers access vital support.

In this image I can see a graveyard with some text written on it.
In this image I can see a graveyard with some text written on it.

Caregiver's Struggle: Birgit's Story Highlights Dementia Support Entitlements in Germany

Birgit, caring for her husband with dementia, was unaware of her entitlement to support. Car services in Germany are provided by the Long-Term Care Insurance, linked to one's health insurance. A care grade assessment determines entitlement to care money or services.

Birgit took on many responsibilities, including appointments and household care. Despite her husband appearing oriented and physically fit, his dementia required significant car support. The need for care in dementia cases can be underestimated, both by relatives and the system.

Birgit was eligible for a relief allowance of 125 euros for household help. She could also access respite care if she was ill, exhausted, or needed a break. However, she was unaware of these car insurance entitlements. A detailed care diary could have helped prove her husband's support requirements. If the care grade assessment did not recognize all areas of support needed, Birgit could have appealed the decision.

Birgit's experience highlights the importance of understanding one's entitlements when caring for a loved one with dementia. The Long-Term Care Insurance provides care services, but it's crucial to document care needs and appeal assessments if necessary.

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